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| TIME | SPEAKER | TEXT |
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| 00:00:11 |
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IF WE COULD RECONVENE, I'M THE MOST OPPORTUNITIES OF ALL, WANDERING -- TRUANT OF ALL, WANDERING AROUND,... |
| 00:00:53 |
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SHE'S HERE. |
| 00:00:54 |
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ALYSSA WILL BE SPEAKING UNDER THE HEADING OF DIRECT TO CONSUMER GENETIC COMPANIES AND AT THIS RESEARCH.... |
| 00:01:24 |
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EVERYBODY HEAR ME OK? |
| 00:01:25 |
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THANK YOU FOR HAVING ME. THIS IS A BIT OF A DAUNTING TASK TO TALK ABOUT RESEARCH AND ALL OF THE DIFFERENT... |
| 00:23:15 |
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THANK YOU, ELISSA AND WE WILL MOVE RIGHT OFF TO QUESTIONS AND DISCUSSION. I SEE A GROUP OF HANDS, I'M... |
| 00:23:28 |
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SO THIS ACTUALLY GOES TO YOUR LAST POINT, ELISSA, WHICH I THOUGHT WAS IMPORTANT, IT HAS TO DO WITH... |
| 00:25:01 |
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I THINK IT DEFINITELY VARIES IN TERMS OF OUR EXPERIENCE NOW, WORKING WITH THE LARGE HE WERE POPULATION... |
| 00:26:43 |
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BUT I THINK THAT'S A PROBLEM. PEOPLE WHO ARE POOR, HAVE MORE COMPLEX CONDITIONS, OR SETS OF CONDITIONS,... |
| 00:26:57 |
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IT WAS A VERY NICE PRESENTATION. I JUST HAVE A FEW QUESTIONS. WHEN THE SPECIMENS THAT YOU'RE LENDING... |
| 00:27:38 |
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THEY'RE ALL RESEARCH RELATED. |
| 00:27:40 |
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THERE ARE TOO MANY QUESTIONS. |
| 00:27:42 |
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AND THEN I WAS JUST WONDERING ABOUT THE FUNDING FOR THE MAYO AND SCRIPPS STUDIES, BECAUSE THESE SOUND... |
| 00:28:30 |
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ALL RIGHT. I MIGHT HAVE TO ASK YOU TO REMIND ME OF THEM AS I GO. VALIDATION OF HISTORY, WE ARE NOT... |
| 00:29:28 |
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DOES IT GET INTO THE CHART LIKE A MEDICAL REPORT? |
| 00:29:29 |
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IT DOES NOT. |
| 00:29:30 |
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DO YOU HAVE A BUSINESS AGREEMENT WITH THEM? I MEAN, WE'RE TALKING ABOUT PIPPA AND CONFIDENTIAL INFORMATION.... |
| 00:29:36 |
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RIGHT. SO ALL OF THESE STUDIES, WENT THROUGH SCRIPPS RIB. |
| 00:29:45 |
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ARE YOU CONSIDERED A -- |
| 00:29:47 |
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WE ARE ESSENTIALLY CONSIDERED THE LAB IN THIS EQUATION. NAVIGENICS PROVIDED THE TESTING PLATFORM. |
| 00:29:56 |
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NAVIGENICS COMPANY IS THE LAB FOR THE RESEARCH? |
| 00:30:00 |
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CORRECT. |
| 00:30:02 |
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THANKS FOR THAT ELISSA, VERY NICE. I WANTED TO FOLLOW UP ON JONATHAN'S QUESTION. CERTAINLY, THE PARTICIPANTS... |
| 00:30:35 |
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I THINK THE BEST ANSWER THAT, IT'S A BROAD RANGE IN TERMS OF AGE, I THINK THROUGH SCRIPPS, YOU'VE... |
| 00:31:48 |
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LET ME JUST LIMIT IT TO THIS. WHAT IS THE NAVIGENICS HEALTH COMPASS EXACTLY, WHAT DO YOU DO? |
| 00:31:53 |
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WHY ESSENTIALLY WHAT IT IS, WE LOOK FOR CERTAIN SNIPS, CERTAIN GENETIC VARIANCE BASED ON THE SCIENTIFIC... |
| 00:32:00 |
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OK. SO. |
| 00:32:03 |
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HIGH RISK ASSESSMENT. |
| 00:32:04 |
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I MIGHT BE MISTAKEN, I'M NOT AN EXPERT IF THIS FIELD, BUT MY UNDERSTANDING IS THAT NONE OF THEM IS... |
| 00:32:55 |
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ACTUALLY, THE WAY THAT WE DESCRIBE IT, AND I DIDN'T HAVE AN OPPORTUNITY TO DISCUSS REALLY HOW WE,... |
| 00:34:37 |
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OK. AND THE SECOND POINT IS, I REALLY DON'T SEE HE WHY YOU'RE NOT -- I MEAN, I JUST LITERALLY DO... |
| 00:34:59 |
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WE ARE. |
| 00:35:02 |
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YEAH. I HAVE REALIZE THAT. |
| 00:35:06 |
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AND CALIFORNIA CERTIFIED. ALWAYS IN CHECK. |
| 00:35:14 |
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HI, I ENJOYED YOUR PRESENTATION AS WELL, BUT I HAVE A COUPLE POINTS THAT I WANTED TO ASK. ONE OF... |
| 00:36:45 |
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I'M START WITH THAT LAST POINT, WHICH IS, I ABSOLUTELY AGREE WITH YOU, I THINK THAT'S PART OF THE... |
| 00:37:48 |
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MOST PHYSICIANS DON'T HAVE KNOWLEDGE TO GIVE ADVICE TO THEIR PARENTS THAT IS GOING TO BE REALLY HELPFUL.... |
| 00:37:53 |
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ONE OF THE THINGS THAT WE'RE TRYING TO DO IN OUR LIMITED CAPACITY AS A SINGLE SORT OF STARTUP COMPANY... |
| 00:38:38 |
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SO THE ANALYSIS IS DONE BY |
| 00:38:39 |
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RIGHT. WE DELIVER OUR SERVICE, BUT EVERYTHING THAT IS GOING TO BE PUBLISHED AND COMING OUT OF IT ... |
| 00:38:56 |
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YOU MAY HAVE ACTUALLY ALREADY TOUCHED THIS OR IT MAY HAVE BEEN OUT OF THE SCOPE -- I'M DIRECTOR OF... |
| 00:39:50 |
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I THINK THE INFORMATION WE GOT PEOPLE NOT BEING AWARE OF THE GENETIC COUNSELING WAS AVAILABLE, THE... |
| 00:40:25 |
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IT SEEMS TO ME IF YOU REALIZED THAT THEY DIDN'T REALLY UNDERSTAND THEIR RISK OR THE RISK THAT YOU'RE... |
| 00:42:07 |
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THANK YOU. I AM AN INTERNIST AND PEDIATRICIAN BY TRAINING, THOUGH CURRENTLY I'M A CHIEF RESIDENT ... |
| 00:43:35 |
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IT'S A GREAT QUESTION. I DO KNOW THAT I HAVE ALL THE ANSWERS TO THAT. WHAT I WILL SAY IS, AND CLEARLY... |
| 00:44:30 |
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MY NAME IS SHARON MURPHY. I AM A SCHOLAR IN RESIDENCE HERE AT IOM. AND MY PAST LIFE I HAVE BEEN A... |
| 00:46:12 |
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SO I HAD ONE EASY QUESTION, AND ONE SORT OF PROBABLY UNFAIR QUESTION. SO WHEN YOU SAY YOU REMOVE IT... |
| 00:46:37 |
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I DO. WE ESSENTIALLY SHARE THE GENETIC INFORMATION, WHICH IN AND OF ITSELF CAN BE CONSIDERED IDENTIFIABLE.... |
| 00:46:50 |
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SO THE 18 IDENTIFIERS ARE NOT INCLUSIVE AND GENETIC INFORMATION AND THEREFORE WHEN YOU RELEASE IT,... |
| 00:47:01 |
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I DON'T THINK WE DEFINE IT AS SUCH. |
| 00:47:08 |
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YOU INCLUDE DHI. |
| 00:47:09 |
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IT DEPENDS ON THE SPECIFIC STUDY. WE ACTUALLY WERE NOT IN THE STUDIES THAT WE HAVE DONE TODAY, WE... |
| 00:47:26 |
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HERE IS THE UNFAIR WHEN. SO WHEN WE SIT HERE AND TALK ABOUT DPC, GENETICS, AND WE HEARD FROM DAVID... |
| 00:49:04 |
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GREAT QUESTION. |
| 00:49:05 |
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I'M SURE PACKWOOD GENOMICS ARE TWO OF THE BEST, BUT THAT MAKES ME WORRY. |
| 00:49:13 |
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I THINK THERE ARE CHALLENGES IN TERMS OF CREATING AWARENESS FOR CONSUMERS. AND WE ARE ALL CONSUMERS.... |
| 00:50:37 |
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DESPICABLE THAT YOU TMS SUGGESTION ON A PUBLIC WEBSITE TO SORT OF DO THE COMPARISON, RIGHT? DO YOU... |
| 00:51:07 |
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I'M SURE IT IS GOING ON. I KNOW THERE ARE LOTS OF INDIVIDUALS, SOME WHO ARE IN THIS ROOM WILL ACTUALLY... |
| 00:51:37 |
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THANK YOU. DATAQUICK. |
| 00:51:41 |
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DOCTOR COLLINS DID MENTION ANALYTICAL ASSET OF THE QUESTION WAS QUITE GOOD BECAUSE IT SEEMED TO AGREE... |
| 00:52:58 |
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I WOULD ACTUALLY SUPPORT WHAT DAVID HAS JUST SAID. IN THE U.K., THERE WAS A REPORTER WHO SENT HIS... |
| 00:54:15 |
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WE ARE NEARING THE END OF THE DAY. IT'S BEEN A VERY PRODUCTIVE DAY, AND YOU HAVE BEEN A LOYAL AUDIENCE,... |
NOTE: The transcript for this program was compiled from uncorrected Closed Captioning.
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Ganz, Patricia
Vice Chair University of California, Los Angeles->Department of Health Services 01:44 of 54:48 -
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McInerney, Joseph
Executive Director National Coalition for Health Professional Education in Genetics 00:33 of 54:48
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