Consumer Genetic Testing Issues

Aug 31, 2009

National Academy of Sciences

The National Research Council and Institute of Medicine held a symposium to explore the health, policy, and ethical implications of direct-to-consumer genetic testing. Scientists spoke about the development and use of direct-to-consumer genetic tests. Among the issues they addressed were their uncertain analytical and clinical validity, .. Read More
The National Research Council and Institute of Medicine held a symposium to explore the health, policy, and ethical implications of direct-to-consumer genetic testing. Scientists spoke about the development and use of direct-to-consumer genetic tests. Among the issues they addressed were their uncertain analytical and clinical validity, questionable clinical utility, future types of genetic testing, possible regulation to protect consumers, and ethical issues associated with marketing genetic tests. Participants responded to questions from the audience.

2 hours, 27 minutes | 125 Views

View Entire Event (4 Programs)

SHARE

  • SEND VIDEO
  • POST VIDEO TO FACEBOOK
  • BOOKMARK VIDEO

TRANSCRIPT

TIME SPEAKER TEXT
00:00:28 Anderson, FrederickAttorney SCIENCES AND IT IS TO AN HALF HOURS. GOOD MORNING, EVERYONE. YOU SEE MEMBERS OF THE PLANNING GROUP...
00:05:50 Bierer, BarbaraSenior Vice President DIRECT CONSUMER TESTING SO THAT EXPLAINS THE FORMATION OF OUR PANEL. I PRACTICE LAW HERE IN WASHINGTON...
00:11:05 Korn, DavidVice Provost THANK YOU AGAIN AND WELCOME TO ALL OF YOU. I WANT TO GIVE A SPECIAL NOTE BECAUSE ONE OF THEM TRAVELLED...
00:20:06 Guttmacher, AlanDirector
00:20:17 Q&A FEEL FREE TO MOVE IF YOU CANNOT SAY. -- IF YOU CANNOT SEE. I WOULD LIKE TO ASK THE ORGANIZERS --...
00:40:27 Moreno, Jonathan D.Professor I REALLY ENJOYED THE FACT THAT TO APPROACH T THIS WITH RESPECT TO THE EXPONENTIAL GROWTH OF THE KNOWLEDGE...
00:42:07 Guttmacher, AlanDirector LIMITED BY THE ELEMENTS ON YOUR PREVIOUS SLIDE? THAT IS A VERY GOOD QUESTION, JONATHAN, THANK YOU....
00:45:12 Korn, DavidVice Provost WITH REGARDS TO THE ACCESSIBILITY WITH ALL OF THIS
00:45:50 Guttmacher, AlanDirector NEW INFORMATION FLOWING IN FROM THE STUDIES. THAT IS A VERY IMPORTANT QUESTION TRADE IF SOMEONE LOOKS...
00:51:09 Anderson, FrederickAttorney LET ME PRESS YOU ABOUT RESEARCH MODELS. IF YOU COULD SUMMARIZE THE RESEARCH MODELS YOU THINK MAYBE...
00:55:52 Bierer, BarbaraSenior Vice President HOW DO YOU THINK THE DIRECT TO CONSUMERS COMMERCIAL ENTERPRISE CAN INTERDIGITATE WITH WHAT'S HAPPENING...
00:56:06 Guttmacher, AlanDirector ELSEWHERE IN THE PUBLIC DOMAIN. -- IN THE PUBLIC DOMAIN? WHAT KIND OF EXPECTATIONS THE ANTICIPATE...
01:00:28 Khoury, MuinDirector GOOD MORNING EVERYONE. THANK YOU FOR THE OPPORTUNITY TO SPEAK THIS MORNING. A DISCLAIMER -- SINCE...
01:32:14 Q&A WE HAVE A LITTLENi TIME FOR QUESTIONS. YOU ARE VERY THOROUGH, BUT I'M SURE THERE WILL BE A QUESTION...
01:32:33 Korn, DavidVice Provost THAT WAS AN EXTRAORDINARILY RICH PRESENTATION AND NOT SURE HOW MUCH OF IT EVERYONE CAN DIGEST IN SUCH...
01:35:01 Ferreira-Gonzalez, AndreaDirector THAT WAS A VERY ELEGANT PRESENTATION [INAUDIBLE] YOU HAVE TO TALK LOUDER. WHEN YOU SHOWED SOME OF...
01:35:50 Khoury, MuinDirector HOW YOU GO FROM NEGATIVE TO POSITIVE JUST FROM WE PUT INTO THE CALCULATIONS IS VERY REVEALING TO ME....
01:38:09 Aitman, TimothyProfessor PHYSICIAN, I WOULD AGREE THAT THE EFFECTS ARE VERY SMALL INDIVIDUALLY. THE DATA ARE VERY RECENT, SO...
01:39:15 Khoury, MuinDirector EVOLUTION, BUT GENERALLY WHEN WE LOOK AT DIABETES WITH GENDER AND BMI AS ONE OF THE FIRST RISK PREDICTORS,...
01:41:37 Becker, K. DavidChief Science Officer TESTING, PRESENT AND FUTURE MARKETS. THANK YOU. THANK YOU VERY MUCH, THANK YOU TO THENi ORGANIZERS...

NOTE: The transcript for this program was compiled from uncorrected Closed Captioning.

RELATED PROGRAMS

PEOPLE GRID LIST

  • Khoury, Muin
  • Becker, K. David
  • Guttmacher, Alan
  • Korn, David
  • Anderson, Frederick
  • Bierer, Barbara
  • Moreno, Jonathan D.
  • Aitman, Timothy
  • Ferreira-Gonzalez, Andrea

PURCHASE